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GU Cancers 2019 | Meaningful, patient-centered research

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John Gore

John Gore, MD, MS, of the University of Washington School of Medicine, Seattle, WA, speaks at the 2019 Genitourinary Cancers Symposium, held in San Francisco, CA and discusses the importance of meaningful research, he specifically speaks on patient-centered research design and outcomes.

Transcript (edited for clarity):

The best ideas are ones that we should’ve been doing the whole time anyway. Like those paper toilet seat covers. But, this is something where we often are siloed from patients. As clinicians, we have this one on one encounter in the clinic or in the operating room where you have that direct patient contact, but somehow we’ve detached research from that patient care diag. Because of that, we’ve precluded our ability to maybe engage in more meaningful research. One thing that’s happened in GU cancers is we’ve had a number of trials in the last, I would say 15 years, that for one reason or another didn’t accrue very well. There were trials where it seemed like to a researcher it was a good idea to compare treatment A with treatment B, but it turns out if you had asked a patient up front, would you subject to a flip of the coin about whether you got treatment A or treatment B, they would say gosh no, I wouldn’t. If we had talked to patients before we designed those studies, we may not have had all of the recruitment struggles we had that lead to flawed trials. If we focus on patient-centered research design and patient-centered outcomes, we can probably do better patient research.

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